Cure SMA Day at Chase Field!
Aug
27
12:30pm12:30pm

Cure SMA Day at Chase Field!

Join us for Cure SMA Day at Chase Field on Sunday, August 27th! We'll watch the Dbacks beat the SF Giants, and then Kyle and Lauren will be featured as Phoenix Children's Hospital kids of the game, before the public is invited to run the bases afterward! 

Portions of ticket sales will go to the Cure SMA Arizona Chapter. Link coming soon!

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Good Sam RV Show - BBQ Showdown to Benefit Cure SMA!
Feb
25
11:00am11:00am

Good Sam RV Show - BBQ Showdown to Benefit Cure SMA!

Join us at the inaugural Good Sam BBQ Showdown February 24 – 25, 2017 at Phoenix International Raceway.

This is an official Barbecue Championship Series Event (BCS) and RV show attendees are invited to see top competition BBQ teams compete in four meat categories: Chicken, Pork Ribs, Pulled Pork and Beef Brisket.

All in attendance are invited to purchase competition quality BBQ samples from the BBQ Teams at the event. Proceeds will benefit the Cure SMA (spinal muscular atrophy) organization.

http://www.goodsamrvshow.com/activities-seminars/

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2016 Walk N Roll to Cure SMA!
Nov
12
9:00am 9:00am

2016 Walk N Roll to Cure SMA!

It's time for us to start planning our 11th Annual Walk-and-Roll to Cure SMA, and we would love your support again! 

This year, our event is on Saturday, November 12th. We ask that everyone arrive by 10am so that we may get a Team KyleLauren photo, and then the Walk begins at 10:30. As usual, we'll have refreshments, lunch, face painting, and a raffle! The Walk is at Steele Indian School Park again this year, which has plenty of parking, spacious covered ramadas with picnic tables, and a playground for the kids. It's our favorite of the parks so far! Learn more on the Facebook page: https://www.facebook.com/events/1591084764524880/

Team KyleLauren--a play on the name of the new Star Wars villain, Kylo Ren--wants to see your purple and orange spirit this year! Join us in your wildest and wackiest, and make this year's Team KyleLauren the most memorable yet! http://events.curesma.org/goto/kylelauren

 

By joining, you’ll help raise funds to support critical research for spinal muscular atrophy, a disease that takes away physical strength by affecting the nerve cells in the spinal cord, taking away the ability to walk, eat or breathe. 

If you can't join us in person, please consider a tax-deductible donation to our team. Even after 11 years, we're still a grass-roots organization of people affected by Spinal Muscular Atrophy, doing the best we can to fight this disease from every angle.

SMA is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. But there’s great reason for hope. We know what causes SMA and what we need to do to develop effective treatments. We’re getting closer and closer to an FDA-approved therapy, with 17 ongoing drug programs—and six of those are now in clinical trials.

I’ve chosen to support Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $57 million in research. 

They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.

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Byrds Fore A Cure 2016 - Cave Creek, AZ
May
7
1:00pm 1:00pm

Byrds Fore A Cure 2016 - Cave Creek, AZ

Join us Saturday, May 7th, 2016 for the 3rd Annual Byrds Fore A Cure Golf Classic at Dove Valley Ranch Golf Club!

Located in north Phoenix, Dove Valley Ranch Golf Club is a desert style golf course with hints of tradition, such as ample fairways and subtly contoured greens with openings in front, featuring a low, rolling mix of holes of varying difficulty. The layout is very playable, but also strategic enough to test the course-management skills of every player. We look forward to seeing you for a great time!

Proceeds from this Byrds Fore A Cure four-person scramble benefit the Arizona Chapter of Cure SMA, a nationwide 501(c)(3) charitable organization comprised of families affected by Spinal Muscular Atrophy.

Player registration, sponsorships and prize donations being accepted now--click here!

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Aug
20
5:30pm 5:30pm

TGen - SMA Night

  • Translational Genomics Research Institute (map)
  • Google Calendar ICS

Please join us for an informative presentation on the work that TGen is doing to find a cure for SMA and get a tour of the TGen facility & labs. 

This is an opportunity to ask questions of the scientists doing the work and time to network with other families. 

RSVP REQUIRED.

This event is family friendly and wheelchair accessible. Check it out on Facebook!

5:30pm-8pm
Tgen
445 N 5th ST
Phoenix, AZ 85018

 

 

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Aug
1
4:30pm 4:30pm

Annual Cure SMA Dinner & Candle Lighting

Spread the word: August is Spinal Muscular Atrophy Awareness month. Join us Saturday, August 1st, 2015 at Fuddrucker's for our family dinner and candle lighting ceremony!

Fuddrucker's will donate 20% of your check to the Arizona Chapter of Cure SMA. 

This restaurant is family friendly and wheelchair accessible. No RSVP required.

4:30-7:30 pm
Fuddrucker's
I17 & Dunlap Ave
8941 Black Canyon Highway
Phoenix, AZ 85021

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