It's time for us to start planning our 11th Annual Walk-and-Roll to Cure SMA, and we would love your support again!
This year, our event is on Saturday, November 12th. We ask that everyone arrive by 10am so that we may get a Team KyleLauren photo, and then the Walk begins at 10:30. As usual, we'll have refreshments, lunch, face painting, and a raffle! The Walk is at Steele Indian School Park again this year, which has plenty of parking, spacious covered ramadas with picnic tables, and a playground for the kids. It's our favorite of the parks so far! Learn more on the Facebook page: https://www.facebook.com/events/1591084764524880/
Team KyleLauren--a play on the name of the new Star Wars villain, Kylo Ren--wants to see your purple and orange spirit this year! Join us in your wildest and wackiest, and make this year's Team KyleLauren the most memorable yet! http://events.curesma.org/goto/kylelauren
By joining, you’ll help raise funds to support critical research for spinal muscular atrophy, a disease that takes away physical strength by affecting the nerve cells in the spinal cord, taking away the ability to walk, eat or breathe.
If you can't join us in person, please consider a tax-deductible donation to our team. Even after 11 years, we're still a grass-roots organization of people affected by Spinal Muscular Atrophy, doing the best we can to fight this disease from every angle.
SMA is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. But there’s great reason for hope. We know what causes SMA and what we need to do to develop effective treatments. We’re getting closer and closer to an FDA-approved therapy, with 17 ongoing drug programs—and six of those are now in clinical trials.
I’ve chosen to support Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $57 million in research.
They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.